Clinical work at Fraser is data driven. Information about, and from the populations we serve – as well as progress made – is reviewed continuously to help improve efficiency and effectiveness of Fraser services. Fraser staff also review stakeholder feedback, informed practices, data from measures used to impact quality improvement projects.
Why participate in research? Gathering data about a population of community members helps us identify practices that provide evidence for positive outcomes. Some studies identify unique subpopulations that uncover interventions that can benefit others who demonstrate similarities. We strive for this precision in clinical work to more quickly arrive at the “best fit” practice in working with those looking for change.
Research Partnerships
Fraser partners with many others leading the way in research in autism, mental health, and other issues that impact our families in order to be knowledgeable about community findings.
- Autism survey through Mass General Bringham
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Autism Prevalence Study
Schools and Healthcare agencies in three counties in Minnesota (including Fraser) provide data on 4 year and 8 year olds for this NIH study
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SPARK Study
An online research partnership advancing understanding of autism that involves 50,000 individuals with autism and their families.
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The FIND Network
A network through the University of Minnesota where families can sign up to receive updated information and be part of research on ASD and NDD.
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Subpopulations in ASD & ADHD
In collaboration with Washington University in St. Louis, we are studying children ages 9-10 to better understand the differences in the brains of those with and without ADHD and with and without Autism.
Research Community Projects
The following research community projects are recruiting family/individual participation. Fraser does not endorse specific projects but as a community partner, is interested in providing opportunities for the individuals we serve
A NIH funded brain imaging study to identify autism symptoms in siblings identified with ASD between 6 and 24 months.
Recruitment of 2.5-5 year old children for intervention study.
USE OF HEALTH RECORDS IN RESEARCH
Like many agencies, Fraser includes consent for use of health records as part of research as part of consent to treatment:
Research leads to new and better ways to diagnose and treat health conditions. Advances depend upon research using healthcare records.
How is research consent managed at fraser? It must be handled as directed by state and federal laws. The child’s identity would be protected in published research results. If caregivers do not allow de-identified information released for research purposes, it will not affect the ability to participate in services at Fraser. If families or individuals choose to opt out, advise a Fraser staff member at check-in, or contact Health Information Management.
PUBLICATIONS BY FRASER STAFF
Research Advisory
Fraser enlists professionals in our community to provide information guidance, advice or consultation regarding research.